Medical and Genetic Privacy
Our Genes, Our Data: Patients’ Right to Access their Own Genetic Information
On May 19, 2016, the ACLU filed a complaint pursuant to the Health Insurance Portability and Accountability Act (“HIPAA”) with the U.S. Department of Health & Human Services (“HHS”) on behalf of four patients against Myriad Genetics, a genetic testing laboratory based in Utah. The complaint was filed by patients who have experienced cancer, including breast and bladder cancers, or who are members of families with substantial histories of cancer.
View Case
Learn About Medical and Genetic Privacy
Stay informed about our latest work in the courts.
By completing this form, I agree to receive occasional emails per the terms of the ACLU's privacy statement.
All Cases
8 Medical and Genetic Privacy Cases
U.S. Supreme Court
Jun 2013
![BRCA](https://assets.aclu.org/live/uploads/2023/01/WEB15-Images-BRCA-1160x864-600x447.jpg)
Association for Molecular Pathology v. Myriad Genetics
Whether human genes can be patented.
Status: Closed (Judgment)
View case
![BRCA](https://assets.aclu.org/live/uploads/2023/01/WEB15-Images-BRCA-1160x864-600x447.jpg)
U.S. Supreme Court
Medical and Genetic Privacy
+3 Issues
Association for Molecular Pathology v. Myriad Genetics
Whether human genes can be patented.
Jun 2013
Status: Closed (Judgment)
View case
U.S. Supreme Court
Jun 2013
![DNA](https://assets.aclu.org/live/uploads/2023/01/WEB15-Images-DNA-1160x864-600x447.jpg)
Maryland v. King
Whether collecting and analyzing DNA samples from arrestees without a warrant or consent violates the Fourth Amendment.
Status: Closed (Judgment)
View case
![DNA](https://assets.aclu.org/live/uploads/2023/01/WEB15-Images-DNA-1160x864-600x447.jpg)
U.S. Supreme Court
Medical and Genetic Privacy
+2 Issues
Maryland v. King
Whether collecting and analyzing DNA samples from arrestees without a warrant or consent violates the Fourth Amendment.
Jun 2013
Status: Closed (Judgment)
View case