News & Commentary about Medical and Genetic Privacy

The ACLU works in courts, legislatures, and communities to defend and preserve the individual rights and liberties that the Constitution and the laws of the United States guarantee everyone in this country.

Activists set against gene patenting gather in front of the US Supreme Court prior to the Association for Molecular Pathology v. Myriad Genetics hearing.

Jun 13, 2023

AMP v. Myriad: The Fight to Take Back Our Genes

Jun 13, 2023

Donated Blood or an Organ? Police Shouldn’t Have Easy Access to Your DNA

Newborn blood samples being prepared for analysis.

Apr 19, 2023

Widespread Newborn DNA Sequencing Will Worsen Risks to Genetic Privacy

A Doctor points to AI biomedical algorithm screen.

Oct 3, 2022

Algorithms Are Making Decisions About Health Care, Which May Only Worsen Medical Racism

Image of Talkspace app on a smartphone on a white background.

Sep 28, 2022

How to Navigate Mental Health Apps That May Share Your Data

Jul 26, 2022

Police Are Using Newborn Genetic Screening to Search for Suspects, Threatening Privacy and Public Health

A protest sign that reads “My Body, My Business.”

May 17, 2022

Impending Threat of Abortion Criminalization Brings New Urgency to the Fight for Digital Privacy

Nov 22, 2021

Congressional Drunk Driver Detection Mandate Raises Privacy Questions

Clipboard with medical form and stethoscope attached

Jun 10, 2021

Patient Privacy Is Not Just About Medical Ethics — It's Vital to Racial Equity and Disability Rights

An electronic ad inside DC's Metro Station for the the DC Department of Health's mobile Covid-19 contact tracing app.

Apr 16, 2021

COVID-19 May Fade, But Will the Tracking Tools Built to Fight It?